Neuroendocrine Tumor Research Foundation (NETRF): The mission of the NETRF is to fund research to discover cures and more effective treatments for carcinoid, pancreatic, and related neuroendocrine cancers. This is the largest organization supporting research for NETs.
NETRF hosts four Neuroendocrine Tumor Patient & Caregiver Educational Conferences annually, which serve to provide the latest information on research and treatment options, while also connecting patients and caregivers with doctors, researchers, and one another. Their website offers a searchable doctor database, listings of all relevant organizations and support groups, information on our latest research projects, and a number of resources to help those who are affected by neuroendocrine cancers. For more information click here.
Carcinoid Cancer Foundation: "The most comprehensive and up-to-date repository of information about carcinoid and neuroendocrine tumors. You should be able to find just about any information you're seeking about these diseases, including information about doctors, support groups, treatment, clinical trials and a wide variety of resources." For more information click here.
Los Angeles Carcinoid Neuroendocrine Tumor Society (LACNETS): "Supporting neuroendocrine cancer patients and their families through education and awareness." Monthly Patient Education Seminars are held various medical centers in the greater LA area. There is an annual meeting for NET patients and caregivers. Our support group, SDNETS, works closely with LACNETS. For more information, click here.
NorCal CarciNET Community: This is the NET patient support group for the San Francisco Bay area. "Our mission is to help those with neuroendocrine tumors and carcinoid to share challenges and experiences, learn about prognosis and treatments, find information, and improve communications between the medical community, patients and caregivers.” For more information click here.
Healing NET Foundation: A non-profit organization formed to raise awareness and to support and fund the best possible medical care for patients with NETs. Founders were Drs. Kjell Oberg (Sweden) and Eric Liu (U.S.) For more information click here.
Carcinoid.com: This site is sponsored by Novartis Pharmaceuticals, the manufacturer of Sandostatin-LAR and other drugs for the treatment of NETS. There are multiple links for more information on a variety of issues. The site has a strong focus on carcinoid syndrome. For more information click here.
Neuroendocrine Cancer Awareness Network (NCAN): A non-profit with a mission to intensify awareness of NETS. NCAN provides access to information about NETS and funding for NET cancer research. For more information click here.
North American Neuroendocrine Tumor Society (NANETS): This site is primarily for physicians who manage patients with NETS. They establish consensus guidelines for optimum management of NETS. For more information click here.