“Neuroendocrine Tumors - A Primer For Healthcare Professionals”: Published by the Healing NET Foundation, the Primer is an excellent resource for patients and healthcare professionals. To view the primer click here.
“Neuroendocrine Tumors, A Comprehensive Guide to Diagnosis and Management”: This is the 4th edition of a comprehensive guide for patients and physicians published by the InterScience Institute. The guide is authored by several expert NET specialist physicians. To access a pdf of this manual click here.
Gastrointestinal Carcinoid Tumors: This informative guide is available from the American Cancer Society. To access a pdf, click here.
“A Patient’s Perspective on Integrative Oncology: Getting Past the ‘War,’ Living with and Beyond Cancer”: Written by Josh Mailman, an extremely active member of the NET, Nuclear Medicine and Integrative Medicine communities, President of the NorCal CarciNET Community, Chair of the Patient Advocate Advisory Board for the Society of Nuclear Medicine and Molecular Imaging (SNMMI), Co-Chair of the Patient Advocate Taskforce for the Society for Integrative Oncology (SIO) and a member of the National Cancer Institute’s task force on NETs. To read his perspective about the article, click here. For the actual guidelines see the next article.
Clinical Practice Guidelines for Integrative Oncology (2009): This article from the Society for Integrative Oncology summarizes guidelines for the use of complementary therapies such as acupuncture, energy therapies, mind-body modalities, and massage therapy. For more information, click here.
“You Have Cancer - Moving from Fear to Hope”: Written by Laurel Zien, an elder care educator and patient advocate with over 15 years of experience, Laurel is a six year (so far) survivor since her diagnosis with a rare neuroendocrine cancer. The book follows the path Laurel took as she moved beyond her initial shock into cancer world. It is based on her experience, research and the shared experience of the Northern California Carcinet Community and their medical experts. Link to this ebook, click here.
“But You Look So Good” (2013): Stories from Carcinoid Cancer Survivors and the basics of Neuroendocrine cancers. This book shares the intimate stories of those living with a poorly understood neuroendocrine cancer and the time it takes to find a correct diagnosis; sometimes years. For more information, click here.
“Becoming Sunny Susan” (2013): Susan L. Anderson, or "Sunny" Susan as she's affectionately known, has dedicated her life to people affected by carcinoid/neuroendocrine tumors (NETs) and has become an energetic advocate for, and educator of, the disease. For more information click here.
“Rollercoaster, A Cancer Journey” (2002): In 1994, Wayne Tefs was diagnosed with carcinoid syndrome. "Rollercoaster" is an account of his journey from the onset of the disease, to eventually learning to live with it. Both practical and spiritual, the book is a must-read not only for those suffering from cancer, but for their loved ones, caregivers and even for those few whose lives have gone untouched by cancer. For more information click here.
“Carcinoid Cancer, Zebras and Stardust: My Sister's Cancer Battle” (2012 updated): This is the story of one person's relentless battle against carcinoid, and of the author's struggle to come to terms with the death of her beloved sister. Inside, you'll also find the words of some of the world's top carcinoid specialists, invaluable reference data, and a comprehensive list of the top carcinoid specialists. For more information click here.